Friday, August 22, 2014

No Medicine More Headaches

Good Morning!

Back in 2012 I suffered severe headaches that doctors didn't know what caused them. I went to hospitals, neurologists and more. Finally one doctor decided to send me to a Sleep neurologist to see if I had sleep apnea. These headaches knocked me down. I couldn't do anything. I wanted quiet and to just be left alone while I laid there. Nine times out of ten I would go to sleep. During that time my husband was very concerned everything went to hell. Laundry wasn't done, if it was it was left in the dryer. Dinner wasn't made by me anymore, which it usually always was. The house, don't even get me started.  The sleep neurologist found I have narcolepsy and every since the treatment my headaches went away. WELL.......

They are back! Living with narcolepsy isn't easy. It's been about 3 weeks since I've been completely weaned off ALL my medications and my headaches are quickly taking over AGAIN! I'm trying to take it a day at a time but when even a nap doesn't help, it's hard. I saw my sleep neurologist yesterday, and he told me exactly what I didn't want to hear. During this pregnancy there isn't any medications I can take to regulate my narcolepsy. He mentioned how majority of the medications can cause spina bifida.  I can't be the reason my child will suffer from a diagnosis the rest of their life. (YES, there is a possibility the child will have narcolepsy BUT that is manageable where they can live a normal life.)

So here goes to the remainder of the pregnancy with no medications! Wish me luck!

Supporting a Friend With Narcolepsy

Friday, August 8, 2014

Since June 2014

Good Afternoon!!
Sorry it's been awhile since I have posted. Here is an update.
After prozac I was put on a 2 prescriptions afterwards and finally found the right one. It helped me a lot. Took the cataplexy symptoms. Well, now my life is about to change again. July 3rd, I found out I was pregnant. July was a hard month; I was weaning off all my medications. I noticed my cataplexy symptoms coming back. July 30th I had finally weaned off all medications. It's getting harder to drive. I'm more tired than usual. There is times I have to pull over because I feel a sleep episode coming on. Currently, I'm 9 weeks and 6 days! We shall see how the remainder of the pregnancy goes!