Back in 2012 I suffered severe headaches that doctors didn't know what caused them. I went to hospitals, neurologists and more. Finally one doctor decided to send me to a Sleep neurologist to see if I had sleep apnea. These headaches knocked me down. I couldn't do anything. I wanted quiet and to just be left alone while I laid there. Nine times out of ten I would go to sleep. During that time my husband was very concerned everything went to hell. Laundry wasn't done, if it was it was left in the dryer. Dinner wasn't made by me anymore, which it usually always was. The house, don't even get me started. The sleep neurologist found I have narcolepsy and every since the treatment my headaches went away. WELL.......
They are back! Living with narcolepsy isn't easy. It's been about 3 weeks since I've been completely weaned off ALL my medications and my headaches are quickly taking over AGAIN! I'm trying to take it a day at a time but when even a nap doesn't help, it's hard. I saw my sleep neurologist yesterday, and he told me exactly what I didn't want to hear. During this pregnancy there isn't any medications I can take to regulate my narcolepsy. He mentioned how majority of the medications can cause spina bifida. I can't be the reason my child will suffer from a diagnosis the rest of their life. (YES, there is a possibility the child will have narcolepsy BUT that is manageable where they can live a normal life.)
So here goes to the remainder of the pregnancy with no medications! Wish me luck!
Supporting a Friend With Narcolepsy